End stage mds suspected – marrowforums

HI all, It’s nice to see a forum about such an unpleasant subject. Real bone marrow My Dad * 83 years old) was diagnosed with MDS about 10 years ago, became transfusion dependant 5 years ago and underwent some chemo about 4 years ago which successfully put him into remission.

Over the past few months he has become transfusion dependant again with only his hemoglobin failing – his white count and platelets are holding.

I’m wondering what to expect since it seems that the MDS has returned and there are no alternatives for him.

He is very tired and weak all the time, feels achy and nauseaus often.


Bone marrow biopsy lymphoma He’s pretty discouraged. Bone marrow aspiration indications Does this sound like end-stage MDS? What else can we expect?

Just a thought….have they ruled out an bleeding which may be causing a drop in HGB only. Bone marrow cells Also, is his iron, B12 and folate at least in the mid range of normal? It is possible that it’s something else causing the drop HGB.

Don’t think “end stage” without looking at counts and IPSS score first. Bone marrow transplant donor procedure Could you provide that information? No alternatives? From the information you provided it is hard for me to beleve that your dad is getting proper treatment. Bone marrow donor pain Please remember that when you hire a hem/onc they can be just as stupid as any other worker, and should be retained or fired just as you would a plumber or a carpenter. Bone marrow uses I was able to train one hem/onc and was happy to get rid of three third-raters. Bone marrow aspiration results If you have not already done so click on “Medical Resources” at the left side of the home page and search “US Treatment Centers”. Bone marrow transplant stories There are several good places in your area. Gifts for bone marrow transplant patients You might consider what worked for me:

1. Tumor of bone marrow cancerous medical term Demand that all blood be leukocyte reduced and irradiated at time of collection. Bone marrow transplant definition This is important for pts getting chronic tx.

2. Bone marrow transplant unit Epogen 60,000 and Neupogen 300 once per week. Bone marrow donation nz They work together so demand the combination.

3. Does donating bone marrow shorten your life Try to maintain Hgb in a range of 10.0 to 12.0. Which bones have bone marrow Going outside of this range can cause trouble.

Thanks for the responses. Bone marrow transplant nursing care To your point, Marlene, my father has been going through lots of tests in the past 8 weeks to determine if there is internal bleeding and so far there is nothing. Procedure of bone marrow aspiration They are also looking to see if he has blood and/or heart infection. Bone marrow aspiration video He is getting the results of the blood cultures today but they’ve done an echocardiogram which was negative and cultured his blood a few weeks ago with no infection cultured.

Wayne, in response to your questions, I don’t have a lot of info on his blood work but could get it. Stage 4 bone marrow cancer survival rate I can’t imagine that his blood has been irradiated or received any other special treatment so I’ll have to get more info on the points that you made.

I have met his hemo/onc and don’t have a lot of confidence in him. Causes of bone marrow He is saying that the MDS hasn’t returned because his platelets are good but from my reading, the platelets and white cells can remain stable while the hemoglobin falls.

This is difficult because he’s in FL and I’m up north. Bone marrow transplant reasons He’s feeling terrible and isn’t really capable of advocating for himself but also won’t admit that…

I’ve tried to make suggestions to him and he does listen but then forgets. Bone marrow transplant for aml I’ve called his doctors myself and they don’t return my call. Bone marrow location in body I am a health proxy for him.

I just read about about the new drug vediva (sp?) and am wondering if that could help him at this point. Donating bone marrow money He had been on revlimid and had to get off it because is was causing him severe leg pain.

Your dad must be very strong fighting this disease for so many years! You know I think it is very common that MDS patients have low red blood cells and normal white blood cells and platelets.

As Whayne already told you you must ask if they have tried to treat your dad with Epogen (for red blood cells) or similar drugs and Neupogen (for white blood cells but works with Epogen for better effect) or similar drugs. Where is bone marrow located in the body He has perhaps had both these types of drugs before?

The drug vediva is unknown to me – do you mean Vidaza? Vidaza is considered to be the best drug for MDS patients except for patients with a chromosome aberration, 5q. Bone marrow aspiration needle name These patients often respond well to Revlimid. Whats a bone marrow transplant It may take at least four months for Vidaza to “kick in” but then about 60 % of the patients have some hematological improvement.

69 yo, dx MDS Interm-1 May 2006, transfusion dependent, Desferal for 4 days with transfusions for iron overload, Neupogen 2 injections/week for low white blood cells, asymptomatic

My dad just came back from the MD and his white count and platelets are down as well as his hemoglobin. How to become a bone marrow donor The same MD who said ” no, the reason you feel so terrible isn’t the MDS coming back” is now saying that it could be leukemia. Where is red bone marrow As you can imagine, I am not at all happy with this MD.

He is going for a BMB on Tuesday – which seems like a long wait when they’re suspecting leukemia… All bone marrow It is so hard to be far away when he is going through this. Bone marrow bones As I said before I can call his doctors until the cows come home and they won’t return my call.

Would the Center of Excellence close to him be a good place to start if this is leukemia? He’s 83 and not in the best of health right now ( I guess obviously) so I’m not sure what kind of treatment would be good for him – if there is any available….

Having a decreased white count is not consistent with a transition to leukemia, which is typically related to an abnormally high white count.

Depending on where your Dad is located in Florida, you might try to get him into either the Mayo Clinic in Jacksonville or the H. What does bone marrow produce Lee Moffit Cancer Center at the University of South Florida in Tampa. Bone marrow disease If he can’t get to either one, you may be able to have a specialist at one of these centers review his BMB results in order to give you a second opinion about his diagnosis and treatment options.

Thank you, Ruth, for your reply. Bone marrow transplant review My mother told me about the white blood count so I need to check and see what the count is – high or low. Bone marrow biopsy pain years later YOur info about the Mayo clinic and Moffet Center are great. How does bone marrow make blood I appreciate it.

Right now, my father doesn’t want me to know so I’m waiting a day before I talk to him. Where is your bone marrow It sounds like every day counts with this disease so I’m not going to wait for too long.

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